Sensible Topic NHS Database - opt out or not?

I will be opting out but there are some things that can't be opted out from.

It's more complicated that it sounds and I'll post some links tomorrow from my work PC as I can't remember them and I'm in the middle of trying to recover an encrypted Home directory.
 
I will be opting out but there are some things that can't be opted out from.

It's more complicated that it sounds and I'll post some links tomorrow from my work PC as I can't remember them and I'm in the middle of trying to recover an encrypted Home directory.

Indeed. Personally I think opting out won't really opt you out so I'll be saying to my GP 'off the record' quite a lot ;)
 
I'm a little paranoid about how secure all the info about myself will be and so, for that reason alone, I will be opting out.

How the hell is the ordinary man (or woman) in the street supposed to comprehend the significances of the various opting out codes. The whole exercise comes over as something deliberately conceived to confuse the general populace.

There's been next to nothing regarding this effin database on the telly or online or have I just had my head in the sand?
 
if we decide to opt out ,how will we know that this has been done ?
we will not be able to look at what is going to be in the data so how will we know what is left out ?
 
I'll certainly be opting out. Some were down the line what's stopping them selling some of your data on? Obviously it won't be personally identifiable but they could still sell it on.
The way this governments going then they will sell it to get some extra bucks to add to there foreign aid
 

I don't know if it's just me or what, but I'm having a helluva of a job getting my head around all of this.

Am I right in supposing that opting out of the 'Summary Care Record' is a different issue to the one of 'Secondary Use of Patient Identifiable Data' opt out?

Surely, there needs to be a much greater public awareness of all this sh"t. Nobody I've spoken to recently has heard anything about what's going on.
 
I don't know if it's just me or what, but I'm having a helluva of a job getting my head around all of this.

Am I right in supposing that opting out of the 'Summary Care Record' is a different issue to the one of 'Secondary Use of Patient Identifiable Data' opt out?

Surely, there needs to be a much greater public awareness of all this sh"t. Nobody I've spoken to recently has heard anything about what's going on.

I was waiting for @Him Her figuring it out and then telling me.

Looks like you might need to give one of these to your doctor 'Dissent from secondary use of GP patient identifiable data':

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The Secondary Care Record and care.data are two seperate things so you'll probably have to opt-out of each individually. The best way to find out is to ask for opt-out forms at your GP surgery - they may have a single form that covers both.

You can't do this online or by email.

You should be aware that if you have certain conditions opting-out may not be in your best interests so you may want to discuss this with your GP before deciding.

If you choose to opt-out then you can change your mind at a later stage and opt-in. However, if you DON'T opt-out and change your mind later it may be too late to prevent your data from being in the possession of someone (or organisation) you'd rather didn't have it.
 
The Secondary Care Record and care.data are two seperate things so you'll probably have to opt-out of each individually. The best way to find out is to ask for opt-out forms at your GP surgery - they may have a single form that covers both.


  • The Summary Care Record is not the same as care.data - opting out of one does not mean that you have automatically opted out of the other

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just got this form from my doctors i suppose there all the same.

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just got this form from my doctors i suppose there all the same.

Another two codes need applying if you don't want a summary care record.

I can't find a form with both on though (9Ndo and 93C1).
 
thanks spectre will go back down in the morning to find out why?
 
I wrote this a few hours ago, got sidetracked and now it seems overtaken by events:-

A few weeks ago, a friend showed me a copy of the opt out form, obtained from his GP. It seemed innocuous enough, as far as I could see, it allowed synchronization between hospital and GP records without needing to use post or email. Tick (or not) a couple of boxes, to allow data flow in one direction and / or the other, that was it.
No detailed information relating to flags etc was given, nor was there any mention of wider distribution within the NHS.

Reading this thread , looking at the flow chart, and tbh, not understanding much of it, I'm not surprised the admin side of the NHS is such a complete shambles.
Working on the basis that any default opt in is never designed for my benefit, getting a form seemed a good idea. I had an opportunity this morning, my wife having booked me in for a prescription review, an annual check up, or something or other.

So, I jotted down the flag designations mentioned, and presented myself at reception. There's a login touch screen with a big greasy thumbprint in the middle, which I always avoid. I'm not averse to a greasy thumbprint, but I do prefer to know where it came from, so I checked in with the receptionist, and asked for the option form at the same time. She said the ones they used "had been withdrawn for clarification". I thought I might get more information from the doctor, if I was lucky.
It's a group practice, so you pick a doctor with a british sounding name, hope you understand, and wait among the caterwauling kids and various pregnant nationalities.:)

Eventually, my turn came, all routine checks normal, and I was pronounced alive. Then the call centre robot script started "At your age, all the medical evidence suggests.........statins................etc.................etc".........., pretty much like garlic and vampires a few hundred years back.
This was way over my attention span, but I did notice simultaneous clattering on his laptop, which reminded me about my query. I tried a few of the flag names, just got a blank look, but at least it stopped the clatter and patter. When I explained further (as best I could), and he'd decided (maybe) I didn't need a psychiatrist, he said relevant seminar training for the practice was in the "pipeline".

So, I'm glad to know I'm still alive, but otherwise pissed off I've wasted a couple of hours of it. If you really want to opt out, they're not going to make it easy, and it's probably futile. The NHS systems look to have evolved piecemeal, and before security concerns were a real issue. The vast numbers of staff involved, the increasing overlap between public and private sectors, and deciding who has legitimate access to what, all to be monitored continually on a system that needs to remain live at all times?
Not a chance, even if you had the intent!

I'll print and present the form supplied by Spectre to my GP though, he may as well be as confused as I am.
The concern is commercial exploitation, but that battle has long been lost in most other ways. I still object on principle, but in reality it won't make me any more or less ill.
I prefer privacy, but I'm not altogether sure why. Apart from drug abuse etc, no one chooses to be ill, or should feel guilt in any way! If we think so, and want privacy for that reason, maybe we're all screwed up.
Now, porn on your PC, that's what privacy is about!:)
 
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